What is a patient advocacy group?
Patient advocacy groups are nonprofit or community-based organizations that support patients by raising awareness, funding research, offering education, and lobbying for better healthcare access. They often collaborate with industry, regulators, and researchers to ensure that patient perspectives are included in decision-making.
Why are patient advocacy groups important in pharmaceutical development?
They provide valuable insights into unmet needs, treatment priorities, and real-world challenges. Engagement with these groups can improve trial design, support recruitment, and enhance communication strategies. Their influence is growing in regulatory, reimbursement, and policy processes.
